Chordoma Survivors (PRIVATE)

If you would like to join this private group, please request to be admitted and then check your Message Box on the left of your fb page and check your OTHER box to see a message from one of the administrators. If you do not see a message please email either Sharon at or Adriane at or Hans at to be admitted. If you do not allow private messages we cannot admit you! Who We Are: This is a support group for those who have Chordoma and their friends/families. We offer SUPPORT to all patients, family and friends. We are CLOSED therefore Private and no one can see our posts except members. We are here to support, advise and share about this rare disease. We are all in this together! Your administrators: Bill, Adriane, Hans and Sharon